Stichting Als Nederland

Stichting Als Nederland

Pythagoraslaan 101, Utrecht, Utrecht, 3584 BB, NL

ALS stands for Amyotrophic Lateral Sclerosis and is also
known as the Lou Gehrig’s disease. It is an incurable
nerve- and muscle disease. Your muscles stop
working one by one.
On average, within 3 years, someone who is diagnosed
with ALS will pass away. Little is known about the cause
of this terrible disease and a lot of research is
needed. In order to do this research we need a lot of
money.
The relatively small amount of ALS-patients (1500 in The
Netherlands) makes financing scientific research to the
cause and treatment of this deadly disease very
hard.

Unique Identification814186099
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This nonprofit is also supported in these funds
Frank's PEDALS: Positive Energy Dueling ALS Fund
1 nonprofit
Frank's PEDALS: Positive Energy Dueling ALS Fund
Three years ago, my brother's best mate (Frank Bos) was diagnosed with ALS, which is a fatal muscle and nerve disease. Frank has been putting his "endless" energy and positivity for 200% at work to raise funds against this awful disease. For that, he has recruited a team of more than 140 friends & family and so far raised over 1 MILLION EURO!! Two years ago I joined the "Tour the ALS" with Frank's PEDALS team to raise funds by climbing the Mont Ventoux. Last year I unfortunately had to skip the 2nd team team PEDALS went up. The good news is that Frank is still around. The bad news is that he's not doing well, however still keeping up his positive spirit. He will be there this year, but can't sit in the tandem-bike to be pedaled up by the his brother and team anymore. On June 18th 2026 I will be riding up Mont Ventoux with Frank's PEDALS team again, and this time my oldest son (17) will be joining me to raise funds. Frank is one of the most energetic, positive, and inspiring persons I know and on top of that a true athlete. We share a passion for cycling and over the years we've undertaken some great biking adventures together like the "Maratona dles Dolomites", riding the Golden Gate Bridge with both families, and the famous Utrecht-Vrouwenpolder tour with exclusively headwind... So....if I can help Frank by jumping on the bike again, then I don't need to think twice! I want to be there for Frank, for his wife and kids, and for my brother Wouter. Please help us raise as much as possible money, which will go towards research to defeat ALS. For more info visit Frank's PEDALS website: https://www.tourduals.nl/teams/frank-s-pedals GO Team PEDALS (Positive Energy Dueling ALS)!!